I know that it has been far too long since my last update, for that I apologize. There is a bunch of stuff that has happened since my last update, all of it good. I will start with what everybody has been patiently waiting for...A update on Mikey.
Yesterday we had our follow up appointment with Mikey's team of doctors. We meet with his surgeon, neurologist, and oncologist, and things could not have gone better. Mike had an MRI on 10/23 and the results of that showed that the tumor was completely removed! All 3 doctors commented on how well he is doing. When you look back at what we were facing in early summer, and how it came out, there could be no better outcome.
We were given a 10 year treatment plan for Mike, consisting of serial MRI's for the next 10 years. That means for the next 2 years he will have an MRI and exam every three months, then every six months till year 5, and finally, just one per year until year 10.
Mikey did get a bit of sad news during our appointment yesterday. It was confirmed yesterday by his surgeon that unfortunately Mike's football career is officially over before it began. Tackle football is a definite No-No with his neck. I am a bit disappointed, but it is completely understandable and a very small price to have paid. Mom on the other hand was ecstatic! She was never a fan of him playing.
The other disappointment for Mike is that he will not be able to play basketball as soon as we had hoped. He is on a local team with his friends and has been practicing with them, but he has been unable to scrimmage or play in games yet. (Although I did cave last game and let him play for 2 minutes...please don't tell his mother.) Mike has been looking forward to the minute he could resume playing in games, and the first thing he asked when the doctor walked into the room was "Can I play basketball now?" Regrettably, he will have to wait a bit longer. The doctor wants to avoid any head and neck contact to give him more time to heal, and he is still experiencing left side weakness. It is more pronounced in his arm and hand, but it is also affecting his leg and foot, causing the ocassional stumble. Although he was not happy about the basketball news, he was cleared to resume PE in school, and he can now play homerun derby with his friends at our house.
In other news...
I participated in the Livestrong Challange in Austin 2 weeks ago. The weather was beautiful, dry and mid 70's. Perfect for this kind of event. My very dear friends Marc and Chris Applebaum came from Michigan to participate in the event. They have been highly active with LAF for several years, and have done the Austin ride a few times. It was great to visit and ride with them again. The ride was a tremendous challange for me, but I did complete it! I should have know that this would be a difficult route, after all, this is the area that Lance Armstrong honed his skill and helped to make him the rider he is today. The hills were relentless. I now truley understand why they call this part of Texas "Hill Country". Foolishly, I thought I could get ready for a ride like this with only a few weeks training, although I think I had a pretty valid reason for delaying the start of my training this summer. I am already developing my training plan for next year, and at a minimum, I will start training several months before the ride, as opposed to several weeks. I think it might make a difference. I wanted to send out a huge THANK YOU to all the people that supported me in this ride. Due to their generosity I was able to raise over $4,000 to go towards the battle against cancer!
I also want to send out an update on the happenings of our other two kids. They have both been extremely helpful and understanding during the past several months, and for that both Wendy and I are eternally grateful.
Shelby is in the midst of her diving season on the high school team. She enjoys the diving and her teammates, but she is not too crazy about the practice time. We drop her off in the school parking lot every morning at 6:10, so the bus can take her to the pool where they practice. She gets ready for school after practice, and rides the bus back to school to start her classes. Shelby got her driving permit this summer and has been bugging us to drive everywhere. What fun it is to drive with your daughter. A few nights ago she was driving and a skunk crossed her path. She was not to happy with the fact that she almost hit it. Being a big animal lover, the thought of almost killing a animal did not sit well with her.
Alex is working with the theater department and their lighting system. They have already put on one play, and are working on two other plays that will start in a few weeks. He is starting to look at colleges and we will be doing visits to schools in the near future. Alex is enjoying the freedom that comes with having his drivers license. He is always asking if he can take the car to go here and there. It is also a big help to Mom and Dad to have another driver around to lend out a hand when one is out of town and the other can't be in two places at once.
I think this is a long enough update for now...I will try to post a bit more frequently. Thanks to everyone who has kept us in your thoughts and prayers! It has been a true blessing that we have come through this recent challenge in as good shape as we did.
Please support Mike and I
Now that Mikey is home and our lives have started to return to normal, I have decided to take part in the LIVESTRONG Challenge in Austin TX this October. The LIVESTRONG Challenge is the Lance Armstrong Foundation's (LAF) signature fundraising event inspired by the hope, courage and determination that exist in all of us. I have joined friends of mine, Marc and Chris, who have been working with LAF for several years. Marc recently rode his bike from Detroit to Philadelphia to raise funds and awareness for LAF and the battle against cancer. After riding 700 miles, he then rode another 100 miles, taking part in the Philly LIVESTRONG Challenge. He and his wife are headed to Austin to ride, so the least I could do is join them. Who knows...Maybe next year I might even join him for the ride from Detroit to Philly.
When we first found out Mikey was sick, people asked how they could help. Well...Now I am asking for that help. I would like to ask that everyone please consider making a donation on Mikey's behalf to the LIVESTRONG Challange at http://austin09.livestrong.org/4mikey. For the 2009 LIVESTRONG Challenge, I am trying to raise $3,000 to support cancer prevention, provide access to screening and care, fund research, and enhance the quality of life for cancer survivors everywhere.
Thank you in advance for your time and generosity. Please feel free to get in touch with me if you have any questions about the Challenge or my goals. I look forward to hearing from you and will be sure to keep you updated on my fundraising and training progress as I prepare for the event.
When we first found out Mikey was sick, people asked how they could help. Well...Now I am asking for that help. I would like to ask that everyone please consider making a donation on Mikey's behalf to the LIVESTRONG Challange at http://austin09.livestrong.org/4mikey. For the 2009 LIVESTRONG Challenge, I am trying to raise $3,000 to support cancer prevention, provide access to screening and care, fund research, and enhance the quality of life for cancer survivors everywhere.
Thank you in advance for your time and generosity. Please feel free to get in touch with me if you have any questions about the Challenge or my goals. I look forward to hearing from you and will be sure to keep you updated on my fundraising and training progress as I prepare for the event.
Back to school time
Posted by
Steve Paver
at
12:30 PM
|
This week marks Mike's return to school. He started on Wednesday and will go 1/2 days for 2 weeks, then back to full time. He continues to do well, but gets tired during the school day. It will take him some time to get his endurance back up to what it was several months ago. We are all glad to be settling into our normal family routine. Several school meeting this week, followed by writing several checks for various booster clubs and activity fees, along with hounding all the kids about their homework. Good times!
Mikey is home today!
After spending the last month in 2 different hospitals, Mikey finally got home today! We are ready to get our lives back to normal, or at least our version of it. We already have several appointments for next week, but at least we get to spend the nights in our beds. To celebrate tonight we are either having a small pizza party or going to Mike's favorite restaurant Buffalo Wild Wings. He is excited to not have to eat the hospitals food anymore.
Mikey will be going back to school on Wednesday. He will have missed the first 2 weeks, and will only be going 1/2 days for another 2 weeks, but we are glad he is going back. Him--Not so much. It will probably take him some time to get adjusted to the school routine.
Thanks to everyone for there thoughts and prayers as we made our way thorough this ordeal. As bad as it was at times, we never lost faith that his outcome would be good. We were able to meet some wonderful people along the way, and some of the kids we meet have a long road ahead of them, so please include them in your prayers.
Mikey will be going back to school on Wednesday. He will have missed the first 2 weeks, and will only be going 1/2 days for another 2 weeks, but we are glad he is going back. Him--Not so much. It will probably take him some time to get adjusted to the school routine.
Thanks to everyone for there thoughts and prayers as we made our way thorough this ordeal. As bad as it was at times, we never lost faith that his outcome would be good. We were able to meet some wonderful people along the way, and some of the kids we meet have a long road ahead of them, so please include them in your prayers.
September is Childhood Cancer Awarness Month
September is Childhood Cancer Awareness Month and September 12 is Childhood Cancer Awareness Day
Here are some things you can do this month (and ALL YEAR ROUND, for the most part!) to support Childhood Cancer Awareness. None of these things involves any financial burden of any kind (except for eating at Chili's ... but hey, ya gotta eat right??)
- Tell everyone you know (and even those you don't know) how you, or someone you love, has been touched by childhood cancer.
- Donate blood: givelife.org
- Dine at Chili’s on September 28, 2009, when they will donate 100% of profits from restaurant sales to St. Jude Children’s Research Hospital: createapepper.com
- WEAR GOLD FOR THE KIDS: cafepress.com/teamunite
- Register to become a bone marrow donor: marrow.org
- Offer to volunteer at a local childhood cancer center.
- Join Team Unite to become part of a unified voice against childhood cancer: teamunite.net
- Join People Against Childhood Cancer (PAC2) to learn of efforts being made around the country to find a cure, raise awareness, and lend support: curechildhoodcancer.ning.com
- Let a family that's been touched by childhood cancer know you STILL CARE and haven't forgotten about their struggles.
- Let a family of an angel know their child remains in your heart.
- Sign the CURE CHILDHOOD CANCER petition (and ask your friends and family to sign, as well!): thepetitionsite.com/1/CureChildhoodCancer
Weekly update
Posted by
Steve Paver
at
10:43 AM
|
Mikey had a very good week at OCH. He continues to do well with his therapy, although he does not like (hates) wearing his cast during the day on his right arm. He is constantly trying to negotiate with me and the therapist about when he has to wear it. When 4:00 rolls around, he can't wait to take it off. But, the cast has helped. I see his left hand get stronger week by week. When I think back to what that hand could do 3 weeks ago vs. what it can do today, I am amazed. He is still on schedule to be discharged next Friday.
Last week Mikey and several of the kids at OCH went on an afternoon field trip to Bass Pro Shop. It was a chance for them to get away from the hospital and have some fun. Everyone enjoyed themselves and are looking forward to next weeks outing, a Texas Rangers baseball game Wednesday night. Wish I could go!
Mikey has turned into quit the little card shark during his stay. He has organized a nightly Texas Hold 'em poker game with himself and 2 of the other boys on his floor. They play each night with a bunch of Skittles. It is a lot of fun to watch these 3 shooters playing cards. When he is not trying to be a World Series of Poker Champion, Mikey enjoys playing Yahtzee and rummy with mom and dad and grandma.
Speaking of grandma (my mom), I will be forever thankful to her for coming down to Texas and staying with us. She was a tremendous help, both around the house, and at the hospital. It was a God send to have someone around to help with the other kids at home, and stay with Mikey when we had to be somewhere else. Thanks Mom!
Last week Mikey and several of the kids at OCH went on an afternoon field trip to Bass Pro Shop. It was a chance for them to get away from the hospital and have some fun. Everyone enjoyed themselves and are looking forward to next weeks outing, a Texas Rangers baseball game Wednesday night. Wish I could go!
Mikey has turned into quit the little card shark during his stay. He has organized a nightly Texas Hold 'em poker game with himself and 2 of the other boys on his floor. They play each night with a bunch of Skittles. It is a lot of fun to watch these 3 shooters playing cards. When he is not trying to be a World Series of Poker Champion, Mikey enjoys playing Yahtzee and rummy with mom and dad and grandma.
Speaking of grandma (my mom), I will be forever thankful to her for coming down to Texas and staying with us. She was a tremendous help, both around the house, and at the hospital. It was a God send to have someone around to help with the other kids at home, and stay with Mikey when we had to be somewhere else. Thanks Mom!
2 more weeks
We got the word yesterday that Mike should be released from OCH on Sept 4th, which is 2 weeks from today. That was some good news. He continues to make progress, but still has a long way to go with the left hand. Once he is released he will return to McKamy Middle School and start 7th grade just a few weeks late. After he is released, he will need to continue his therapy on an outpatient basis 2 - 3 times a week.
Last post I mentioned that Mike had to have an EEG done to rule out that a seizure was causing his left hand to twitch. Well the results came back and it is just like we thought, he is not having any seizure. It is most likely just part of the healing process and should go away at some point as his spinal cord and nerves continue the healing process. His neurosurgeon says that we should expect some different things to happen to his arm and hand over the next 6 months as his cord and nerves work things out.
Mike is in good spirits most of the time, he still can get frustrated with his hand, but when we look back at the progress he has made over the past 2 weeks, it is amazing. I am sure he will continue to make good progress because he always works hard when he is with his therapists and improves with each session.
Mikey also had a follow up appointment with Dr. Swift, his neurosurgeon, yesterday. Dr. Swift was at the tumor board meeting yesterday and they decided that Mikey will not require any additional treatment for his tumor right now. YEA!! Based on the MRI that was done the day after surgery, the radiologist, surgeon, and the rest of the team are pretty confident that the entire tumor was removed. They are going to have another MRI done in about 3 months to set the new baseline image for his neck and to confirm that the tumor is gone. After that there will be MRI's every 3 months for several years to keep an eye on Mike and compare each new MRI with his new baseline.
Mike also got to get his stitches removed yesterday and he was very happy about that. When we meet initially with Dr. Swift, he applied some numbing cream to his neck and told us it takes about 40 minutes to work and that we could go get something to eat and come back to his office, then he would remove the stitches. So we go to the food court and eat and on our way back Mikey states that he is glad that Dr. Swift, instead of one of his helpers, is taking his stitches out "because I have confidence in him." I was cracking up! I would hope he had some confidence in him, since he had Mike on the operating room table digging around in his spinal cord for 11 hours.
Now for just a brief shout out to Dr. Dale Swift and the rest of the team treating Mikey. This team has accomplished something amazing. Considering what we were told after the first operation in Detroit, it is an under statement to say that I was more that a bit nervous going into the second operation, but Mikey came out of it with as close to flying colors as I think was possible. Dr. Swift knew from our first meeting with him that he would be able to get this. I now know why God brought us to Dallas. It was to get us close to Dr. Swift and the entire team at both Children's Medical Center and Our Children's House at Baylor. We heard about Dr. Swift's reputation before the surgery, but during our stay at OCH the past week we have come across several people that also had him as their doctor, and they have had equally amazing results. We are eternally thankful to have meet Dr. Swift, I hate to think about what the outcome might have been had we not.
Last post I mentioned that Mike had to have an EEG done to rule out that a seizure was causing his left hand to twitch. Well the results came back and it is just like we thought, he is not having any seizure. It is most likely just part of the healing process and should go away at some point as his spinal cord and nerves continue the healing process. His neurosurgeon says that we should expect some different things to happen to his arm and hand over the next 6 months as his cord and nerves work things out.
Mike is in good spirits most of the time, he still can get frustrated with his hand, but when we look back at the progress he has made over the past 2 weeks, it is amazing. I am sure he will continue to make good progress because he always works hard when he is with his therapists and improves with each session.
Mikey also had a follow up appointment with Dr. Swift, his neurosurgeon, yesterday. Dr. Swift was at the tumor board meeting yesterday and they decided that Mikey will not require any additional treatment for his tumor right now. YEA!! Based on the MRI that was done the day after surgery, the radiologist, surgeon, and the rest of the team are pretty confident that the entire tumor was removed. They are going to have another MRI done in about 3 months to set the new baseline image for his neck and to confirm that the tumor is gone. After that there will be MRI's every 3 months for several years to keep an eye on Mike and compare each new MRI with his new baseline.
Mike also got to get his stitches removed yesterday and he was very happy about that. When we meet initially with Dr. Swift, he applied some numbing cream to his neck and told us it takes about 40 minutes to work and that we could go get something to eat and come back to his office, then he would remove the stitches. So we go to the food court and eat and on our way back Mikey states that he is glad that Dr. Swift, instead of one of his helpers, is taking his stitches out "because I have confidence in him." I was cracking up! I would hope he had some confidence in him, since he had Mike on the operating room table digging around in his spinal cord for 11 hours.
Now for just a brief shout out to Dr. Dale Swift and the rest of the team treating Mikey. This team has accomplished something amazing. Considering what we were told after the first operation in Detroit, it is an under statement to say that I was more that a bit nervous going into the second operation, but Mikey came out of it with as close to flying colors as I think was possible. Dr. Swift knew from our first meeting with him that he would be able to get this. I now know why God brought us to Dallas. It was to get us close to Dr. Swift and the entire team at both Children's Medical Center and Our Children's House at Baylor. We heard about Dr. Swift's reputation before the surgery, but during our stay at OCH the past week we have come across several people that also had him as their doctor, and they have had equally amazing results. We are eternally thankful to have meet Dr. Swift, I hate to think about what the outcome might have been had we not.
Mikey update
Mike continues to make improvements during his therapy sessions. Today he used his removable cast for a good part of the day but become very frustrated during meals while trying to eat using just his left hand. He does not have much control or strength in that hand, so eating was a challange. I am sure that he will continue to improve, but it can be tough to see him struggle with something that was once so easy.
Yesterday Mike developed a twitch in his left hand. He had the same twitch right after his surgery, but it went away after a day or so. Well now it is back. I think it is because they have weened him off the steroid he was taking, but tomorrow he is going to get an EEG to rule out any type of seizure. Probably a wasted test, but I remember thinking the same thing before his first MRI. Better to have it checked out. It doesn't bother him at all and will most likely go away as his neck and spinal cord heal.
Please continue to pray for Mikey to have the patience to put up with all the stuff his therapists have him do. They are working him hard, but they have produced some incredible result in the other kids that are here.
Yesterday Mike developed a twitch in his left hand. He had the same twitch right after his surgery, but it went away after a day or so. Well now it is back. I think it is because they have weened him off the steroid he was taking, but tomorrow he is going to get an EEG to rule out any type of seizure. Probably a wasted test, but I remember thinking the same thing before his first MRI. Better to have it checked out. It doesn't bother him at all and will most likely go away as his neck and spinal cord heal.
Please continue to pray for Mikey to have the patience to put up with all the stuff his therapists have him do. They are working him hard, but they have produced some incredible result in the other kids that are here.
Mikey getting a cast

Today in therapy Mikey had his right arm put into a cast. His right arm is his strong, good arm and by casting it, that will force Mike to use his left hand and arm. Making him use it more will help it to heal faster. He has taken all this in stride.
Once the cast was set and hard, they will cut it off and attached straps to it. This will allow us to remove the cast when he showers and sleeps, but whenever he is awake he must have it on.
Mikey thinks / wants to take the cast off to eat. He says he needs to since he can't use his left hand very well. I said, backed up by the staff, that he will either learn to use his left hand, or he will get skinnier. :)
Pathology is in!
Just got off the phone with Mike's oncologist, and the news was good! Mike has a low grade tumor called a Ganglio Glioma and his prognosis is very good. He may not even require any additional treatment other than MRI's evey three months. The final determination on his treatments will be made next week when the tumor board meets. It is still possible that the board will recommend radiation treatment as a preventative measure, but they may just want to watch him very closely over the years.
We are all very relieved to finally has a name for this tumor. Now Mike needs to concentrate on his rehab so we can hopefully put this behind us. He continues to make progress everyday and he is working very hard with his therapists.
We want to thank everyone for their prayers through this ordeal.
We are all very relieved to finally has a name for this tumor. Now Mike needs to concentrate on his rehab so we can hopefully put this behind us. He continues to make progress everyday and he is working very hard with his therapists.
We want to thank everyone for their prayers through this ordeal.
Mikey was moved today
Mikey was moved today from Children's Medical Center to the rehab hospital, Our Children's House (OCH) at Baylor. It is in downtown Dallas and is dedicated to helping children rehab from all sorts of things. He was moved today around noon, and got his second ride in an ambulance. He thought it was cool and now Mom and I have each gotten to a ride with him in an ambulance.
He continues to work hard with his therapists and is making progress every day. When I think back to how he was just a week ago, I am truly amazed at what he is able to do, especially when you consider how much of his cord was compromised by the tumor. I am not sure how long he will be at OCR, but there will be a care meeting with his team on Friday, and should know more then.
We are still waiting on the pathology report. If anyone is looking for a field to go into, I would like to recommend pathology. They apparently could use some more help, since it takes so long to get a report back from them. The tumor board at Children's is meeting tomorrow morning and I think they will know more then. The pathologist will be attending the meeting as will all of the other doctors that are art of the team. They all sit down face to face and it allows the guy who actually saw the tumor and took it out to talk with the guy looking at it under the microscope. I am expecting to get some more information in the afternoon.
More updates as information becomes available.
Thanks for everyone's thoughts and prayers, please keep 'em coming.
He continues to work hard with his therapists and is making progress every day. When I think back to how he was just a week ago, I am truly amazed at what he is able to do, especially when you consider how much of his cord was compromised by the tumor. I am not sure how long he will be at OCR, but there will be a care meeting with his team on Friday, and should know more then.
We are still waiting on the pathology report. If anyone is looking for a field to go into, I would like to recommend pathology. They apparently could use some more help, since it takes so long to get a report back from them. The tumor board at Children's is meeting tomorrow morning and I think they will know more then. The pathologist will be attending the meeting as will all of the other doctors that are art of the team. They all sit down face to face and it allows the guy who actually saw the tumor and took it out to talk with the guy looking at it under the microscope. I am expecting to get some more information in the afternoon.
More updates as information becomes available.
Thanks for everyone's thoughts and prayers, please keep 'em coming.
Just hanging in the hospital
It's Saturday afternoon and we are watching the Rangers play the Angels on TV. Mikey has been busy to past few days with physical and occupational therapy. Yesterday he went for his first walk which was about 50 feet in the hallway. Today we went for a few walks. One around the floor with the therapist and then later down to the fourth floor to the Aikman Endzone. That is a fun place to go play games and do different activities.
He was pooped when we got him back to the room. Then the occupational therapist came by and we played Connect Four and some other task to work on his fine motor skills in his left hand. He will need to continue working on his left hand and leg strength and coordination.
His surgeon also came by today and said he is making good progress. He will probably be transfered to the rehab facility sometime next week. Most likely Tuesday or Wednesday. He also said that Mike will have another MRI in about 6 weeks once the edema in his neck has gone down. I asked him how much of the tumor he removed and his estimate was that he got about 90% of it. Got to be happy with that!
Still no word on the pathology report. I'm guessing we will see those middle of next week.
He was pooped when we got him back to the room. Then the occupational therapist came by and we played Connect Four and some other task to work on his fine motor skills in his left hand. He will need to continue working on his left hand and leg strength and coordination.
His surgeon also came by today and said he is making good progress. He will probably be transfered to the rehab facility sometime next week. Most likely Tuesday or Wednesday. He also said that Mike will have another MRI in about 6 weeks once the edema in his neck has gone down. I asked him how much of the tumor he removed and his estimate was that he got about 90% of it. Got to be happy with that!
Still no word on the pathology report. I'm guessing we will see those middle of next week.
Mikey is out of the ICU
Mikey had a busy day today. This morning he was visited by his doctors who continue to be pleased with his progress. He is still experiencing left side weakness, but it is getting better. Yesterday he had an MRI and they wanted to check swelling in the area of his surgery. It was what they were expecting to see, so that was good. The swelling did not allow a good view of any possible remaing tumor, so I think they will do another MRI in a few days.
The ladies from physical therapy came by and got Mike up out of his bed and sitting in a chair for 90 minutes today. That was a big step for him today (no pun intended)and I think they are planning on having him try and walk a few steps tomorrow. Soon we will be doing laps around the ninth floor.
Later in the afternoon he was moved from ICU to his normal room that he will ne in for the rest of his stay. We are very happy to be out of the ICU. Great folks, but they don't let Mom and Dad have anything to eat or drink in the room, and I need my coffee.
Now let's blog about pathology. During surgery the tumor was sent to the lab to determin what kind it is. We have not heard the results of that yet and we are patiently waiting. If the results arn't back by Friday, I don't expect to hear anything til next week. As we found out last time through this, pathologists don't work weekends. Once we get the report back, then the couse of treatment will be determined. Right now we just have to wait.
All in all, I am extremely happy with how things have been going so far. Still have several hurddles to overcome, but one of the biggest is out of the way. Thanks again to everyone for your thoughts and prayers and please keep them coming.
The ladies from physical therapy came by and got Mike up out of his bed and sitting in a chair for 90 minutes today. That was a big step for him today (no pun intended)and I think they are planning on having him try and walk a few steps tomorrow. Soon we will be doing laps around the ninth floor.
Later in the afternoon he was moved from ICU to his normal room that he will ne in for the rest of his stay. We are very happy to be out of the ICU. Great folks, but they don't let Mom and Dad have anything to eat or drink in the room, and I need my coffee.
Now let's blog about pathology. During surgery the tumor was sent to the lab to determin what kind it is. We have not heard the results of that yet and we are patiently waiting. If the results arn't back by Friday, I don't expect to hear anything til next week. As we found out last time through this, pathologists don't work weekends. Once we get the report back, then the couse of treatment will be determined. Right now we just have to wait.
All in all, I am extremely happy with how things have been going so far. Still have several hurddles to overcome, but one of the biggest is out of the way. Thanks again to everyone for your thoughts and prayers and please keep them coming.
Quick update on Mike
This will just be a quick update. Mikey is still resting in the ICU.
His doctors came by this morning and are happy with his progress so
far. Not much has changed since last night.
His doctors came by this morning and are happy with his progress so
far. Not much has changed since last night.
They have scheduled him for a MRI this afternoon. Pending the results
of the MRI he may get to go to his regular room tonight.
Resting tonight
Posted by
Steve Paver
at
12:09 AM
|
It is almost midnight here in Texas and I am finally grabbing a bite to eat in the hospital cafeteria. Mikey did very well in surgery and recovery. He woke up very thirsty and had several apple juices before we saw him. He is now resting in the ICU tonight and will probably go to a regular room tomorrow afternoon.
Mikey appears to have come through the operation in pretty good shape. He is able to move his arms and legs, which is a good sign. He is experiencing weakness with his left arm and leg, but that was to be expected. We are happy that he is able to move them right now. It will still be a couple of days before we have a better idea how is doing neurologically, but it is looking pretty good right now.
Just spoke with the surgeon
We just finished speaking with the neurosurgeon that operated on Mikey. He was very happy with how things worked out today. He was able to remove everything that he could visually see, and even went back in to get a bit more they found on ultrasound towards the end. He said the tumor had taken up about 90% of the available space inside Mike's spinal cord, and he had to have a small piece of bone removed for them to have access.
Mikey is still in the OR right now with anesthesia, but should be moving to recovery fairly soon. He will spend tonight in the ICU. Our next hurdle is to see how he did neurologically. We should know more about that as he wakes up, and over the next few days.
Thanks to everyone that was praying for us today. Please keep them coming so that he comes through this without any neurological problems. Anytime they operate in an area as sensitive as the spinal cord that is a risk that you take.
We are hoping to see Mikey in recovery in the next hour or so. I will post more information when we get it.
It's been a long day, but we are very happy with what we have heard so far.
Mikey is still in the OR right now with anesthesia, but should be moving to recovery fairly soon. He will spend tonight in the ICU. Our next hurdle is to see how he did neurologically. We should know more about that as he wakes up, and over the next few days.
Thanks to everyone that was praying for us today. Please keep them coming so that he comes through this without any neurological problems. Anytime they operate in an area as sensitive as the spinal cord that is a risk that you take.
We are hoping to see Mikey in recovery in the next hour or so. I will post more information when we get it.
It's been a long day, but we are very happy with what we have heard so far.
Still in surgery
Posted by
Steve Paver
at
4:10 PM
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Just a quick update...
As of 4:00 CDT, Mikey is still in surgery. The procedure was originally scheduled for 4 hours, but the surgeon said this morning that if it took longer it would be better, so this must be good news. He has been in for 8 hours and counting. We have been getting hourly updates from the nurses in the room with Mikey, and things seem to be going well. They have gotten to the tumor and have been slowly removing it.
They are saying it could still go for another couple of hours.
As of 4:00 CDT, Mikey is still in surgery. The procedure was originally scheduled for 4 hours, but the surgeon said this morning that if it took longer it would be better, so this must be good news. He has been in for 8 hours and counting. We have been getting hourly updates from the nurses in the room with Mikey, and things seem to be going well. They have gotten to the tumor and have been slowly removing it.
They are saying it could still go for another couple of hours.
Mikey is in surgery
Posted by
Steve Paver
at
8:59 AM
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It is now 9:00 AM here is Dallas. Mikey was rolled into the operating room just over an hour ago. He was a bit scared, but doing very well. The surgeon said this will take about 4 hours, but could go longer depending on what they find and how they are doing. The are several risks associated with trying to get a tumor out of his spinal cord, so they are taking their time will working on Mike. I am good with that! It will be later this afternoon before we will have any real update. The nurse will give us some news every hour or so during the operation, but it will be later this afternoon before we know more.
As always thanks for keeping us in your thoughts and prayers.
As always thanks for keeping us in your thoughts and prayers.
Shelby has her drivers permit! YIKES!
Shelby now has her permit and is already bugging me on a regular basis to go driving. Now it should be noted that in Texas, you get your permit before you ever sit behind the wheel and drive. State law says the kids need their permit to drive on TX roads, even with an instructor. Shelby has had a grand total of one lesson with and instructor and now thinks she is ready to help with all our driving. She even went so far the other night to suggest that I have some adult beverages at dinner, then she could drive home. It would obviously be safer to have her drive home than for me to drive after drinking. I told her that I appreciated the offer, but that I could refrain from those type of beverages just this once.
I did take her out on the roads and to her high school parking lot the other night, and I must admit, that for a first time driver she is doing well. She still has a long way to go, but there is hope.
I did take her out on the roads and to her high school parking lot the other night, and I must admit, that for a first time driver she is doing well. She still has a long way to go, but there is hope.
Rangers game last night
Last night Mike and
I went the the Texas Rangers game to see the Detroit Tigers get their butts kicked for the second night in a row. We went with Mike's friend Carter and his dad Scott. Other than the outcome of the game, we had a good time. I was able to get great tickets 11 rows from the field by the Tigers dugout. Mikey got to meet the Rangers mascot, Captain, during the game. He came down to say "Howdy" to Mike and had a bag of goodies for him to take home. Mike was very surprised and couldn't fig
ure out how Captain knew about him.
After the game we stuck around for a bit and got a couple of autographs of pitchers coming our of the bullpen.
After the game we stuck around for a bit and got a couple of autographs of pitchers coming our of the bullpen.
Legally Blonde the musical
On Sunday we all went out to see the musical version of Wendy's favorite movie, Legally Blonde. Wendy and Shelby were hooked on the reality show last year that followed a bunch of girls trying to get the lead role in the play. Turns out 2 of the girls from the TV show had supporting roles in the play we saw, so that was kinda cool to 'see where are they now'.
The play started a bit slow and I was not to impressed with the first 2 numbers, but once they got going and warmed up, it was much better.
Everyone had a good time and it was good to get out and have a bit of fun.
The play started a bit slow and I was not to impressed with the first 2 numbers, but once they got going and warmed up, it was much better.
Everyone had a good time and it was good to get out and have a bit of fun.
Mikey Update
Well...quit a bit has transpired since my last post so let me take a minute to get everyone caught up to date on what is going on with Mikey.
June 30: Mikey was discharged from the hospital and we took him to his Grandma's to rest for a few days before we travel back to Dallas.
July 6: Mikey, Wendy and Grandma get to fly to Dallas on a corporate aircraft thanks to Corporate Angel Network. They coordinate the use of company planes that have been made available to transport cancer patients. He really had a blast traveling in style. I however, got to drive back with Shelby and our dog Piper.
July 7: First meeting with the oncologist in Dallas. He reviews MRI images and all notes and reports from the hospital in Detroit. He takes Mikey's case before the tumor board for review.
July 9: Tumor board has meet and they are recommending a second MRI and second surgery. The second surgery is to be more aggressive in getting the tumor out. Their recommendations are in line with the findings of the tumor board in Detroit as well.
July 10: Big scare tonight! I was at work, when I get a text message from Wendy saying that Mikey had to have his first ambulance ride to the hospital. His pain became so severe that he was just about incapacitated, so the paramedics were called, an IV with morphine was stated and he was transported. Spent a few hours in the ER, pain got better and he was put on a steroid to help with swelling around the tumor, which helps a bunch with the pain.
July 13: Second MRI of the entire spine this time. Mikey does very well during the MRI. Poor guy had to lie there for 2 hours while they performed the various scans. He has to get another IV for the contrast to be injected, but we discover a great little tool that numbs the injection site by using compressed air to blow the numbing agent under the skin with no injection. Mike felt nothing at all during this procedure, so it is our new best friend when it comes to starting IV's.
After the MRI we meet with the pediatric neurosurgeon. He reviews the new MRI images and discusses the 2 options the tumor board came up with. 1) No surgery and just treat with radiation. 2)Surgery to remove most, if not all, of the tumor, followed by radiation if needed. He tells us that nobody on the tumor board thinks Option 1 is a good idea. So...surgery is scheduled for Aug 4.
Mike's medication are changed a bit and adjusted to manage his pain until we get to the surgery date.
So there it is...We are up to date...More updates to follow...
June 30: Mikey was discharged from the hospital and we took him to his Grandma's to rest for a few days before we travel back to Dallas.
July 6: Mikey, Wendy and Grandma get to fly to Dallas on a corporate aircraft thanks to Corporate Angel Network. They coordinate the use of company planes that have been made available to transport cancer patients. He really had a blast traveling in style. I however, got to drive back with Shelby and our dog Piper.
July 7: First meeting with the oncologist in Dallas. He reviews MRI images and all notes and reports from the hospital in Detroit. He takes Mikey's case before the tumor board for review.
July 9: Tumor board has meet and they are recommending a second MRI and second surgery. The second surgery is to be more aggressive in getting the tumor out. Their recommendations are in line with the findings of the tumor board in Detroit as well.
July 10: Big scare tonight! I was at work, when I get a text message from Wendy saying that Mikey had to have his first ambulance ride to the hospital. His pain became so severe that he was just about incapacitated, so the paramedics were called, an IV with morphine was stated and he was transported. Spent a few hours in the ER, pain got better and he was put on a steroid to help with swelling around the tumor, which helps a bunch with the pain.
July 13: Second MRI of the entire spine this time. Mikey does very well during the MRI. Poor guy had to lie there for 2 hours while they performed the various scans. He has to get another IV for the contrast to be injected, but we discover a great little tool that numbs the injection site by using compressed air to blow the numbing agent under the skin with no injection. Mike felt nothing at all during this procedure, so it is our new best friend when it comes to starting IV's.
After the MRI we meet with the pediatric neurosurgeon. He reviews the new MRI images and discusses the 2 options the tumor board came up with. 1) No surgery and just treat with radiation. 2)Surgery to remove most, if not all, of the tumor, followed by radiation if needed. He tells us that nobody on the tumor board thinks Option 1 is a good idea. So...surgery is scheduled for Aug 4.
Mike's medication are changed a bit and adjusted to manage his pain until we get to the surgery date.
So there it is...We are up to date...More updates to follow...
My First Post
I've been threatening to start a blog for months now. Always had some reason to not do it. Who would want to hear about what I had to say on any given day. Well today is no ordinary day, for me or my family. As I hack out my first blog, I am sitting in the ICU of Children's Hospital in Detroit, at 1:17AM, watching my 12 year old resting after he had surgery.
Mikey turned 12 one hour and seventeen minutes ago. What a way to spend your 12th birthday! It turns out he has cancer and the tumor is on his cervical spine located between C3 and C4. But lets go back a bit so you know how we got here.
Mike had been complaining about neck pain at night for a few weeks. Up until this week, some Motrin and Bio-Freeze seemed to do the trick. But things got worse this week. This week when he got up he was in extreme pain. Bring him to his knees kind of pain, and there was nothing I could do about it. The episodes would last an hour or so, then begin to trail off and he would go back to sleep.
It just so happened, that this week is also the week we chose to go on vacation from our new home in Texas, back to our old home in Michigan to visit friends and family. Three nights ago, Mikey spent the night at one of his friends house, whose Mom just happens to be a Pediatrician. He had another attack, with a Doc there to experience it first hand. The next morning she was able to get him in to see a Ortho Doc. After an examination, they agreed that Mikey should get an MRI to see what was going on. This was on a Wednesday and the MRI was scheduled for Thursday. It was as a result of the MRI that the tumor was discovered. We ended up that night in the ER of Children's Hospital in Detroit, where he was admitted. Surgery took place on Friday afternoon, the day before Mike's 12th birthday.
Mikey turned 12 one hour and seventeen minutes ago. What a way to spend your 12th birthday! It turns out he has cancer and the tumor is on his cervical spine located between C3 and C4. But lets go back a bit so you know how we got here.
Mike had been complaining about neck pain at night for a few weeks. Up until this week, some Motrin and Bio-Freeze seemed to do the trick. But things got worse this week. This week when he got up he was in extreme pain. Bring him to his knees kind of pain, and there was nothing I could do about it. The episodes would last an hour or so, then begin to trail off and he would go back to sleep.
It just so happened, that this week is also the week we chose to go on vacation from our new home in Texas, back to our old home in Michigan to visit friends and family. Three nights ago, Mikey spent the night at one of his friends house, whose Mom just happens to be a Pediatrician. He had another attack, with a Doc there to experience it first hand. The next morning she was able to get him in to see a Ortho Doc. After an examination, they agreed that Mikey should get an MRI to see what was going on. This was on a Wednesday and the MRI was scheduled for Thursday. It was as a result of the MRI that the tumor was discovered. We ended up that night in the ER of Children's Hospital in Detroit, where he was admitted. Surgery took place on Friday afternoon, the day before Mike's 12th birthday.
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